Epilepsy
That's what my son has. I'm still shocked and really don't even know what to say about it. The Epilepsy is being caused by a brain malformation. Somewhere during my pregnancy his brain did not form properly in a small area on the left side. This area is causing him to have seizures.
Seizures are grouped into two different categories: Generalized and Partial
My son is having Partial Seizures, two different kinds: Simple Partial and Complex Partial.
Simple Partial: May involve jerking on one side, or child may report unusual sensations such as odd tastes, smells, movements or "pins and needles." May have unusual emotions for a given situation such as fear, sadness or anger. May have a stomach ache or nausea.
Complex Partial: Child appears to be in a dream-like state. Usually unaware or un responsive to questioning. May perform unusual actions such as picking at clothing, facial grimacing, contorting on one side, or chewing or tasting motions. Usually lasts from 30 seconds to 3 minutes. Afterwards will feel confusion for several minutes.
Unfortunately, partial seizures can become generalized seizures. At any time, the seizure can spread to the entire brain causing him to have the big seizures that are scary as hell.
He will be put on medication to help stop the seizures. The medicines have side-effects too including learning disabilities. The medicine that he started on last night is the only medication that has been tested and proven to not cause learning problems. Let's hope that his system can tolerate this medicine.
We were at the doctor's office for 1 1/2 hours yesterday. She was great. She spent so much time with us explaining things and generally trying to make us feel comfortable with what she was telling us. I feel much better about this doctor's office now than I did at our 1st visit. We did not see the doctor we saw last time (thank god).
All the information given is overwhelming. We were told to research, read and try to understand what Epilepsy is all about.
I'm just glad that we know what it is and that there is something we can do about it.
2:45 p.m. - October 15, 2004
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